Going from strength to strength.
October 19th, Wednesday, 10am.
RSVP Darryl by Oct 9th 4636 0406
AART SIMONS is coming to Toowoomba to talk about MS and Relationships. Aart is a clinical psychologist with extensive experience in counseling people with MS, and also their families. Don’t miss this rare and valuable opportunity!
PLUS Win prizes by buying raffle tickets to support the MS group who supports you!
Receive a free information bag on arrival filled with helpful product and service information, complete with note pad and pen to take down info and swop details when you meet new people!
Stay on afterwards for a cuppa and lunch to meet with others living with MS and speak with Aart Simons. (Please bring a plate to share.)
Get your diary out now and RSVP Darryl asap to help us make it a great day for all!
November 16th, Wednesday, 10.30 Guest Speaker Peter Coy is speaking on the benefits and setting up of Skype to keep in touch with other people living with MS.
The MS Support Group's
19th birthday party lunch was held at the Glenvale Hockey Club, which was a
resounding success with around forty people present. It was great to see
friends from Ipswich and
Judy wishes to send her big thanks for everything to all the MS committee, MS Qld. and all her good friends for their kind thoughts. There have been many phone calls after her resignation from the MS Committee, and expressions of thanks from so many people for the benefits that the Newsletter and Website have given to people over the years.
We also welcome Ian and Frances from Warwick, Janie, Joanne and Ian from Toowoomba to our support group community. Ian was convinced people had camped out overnight at Club Glenvale to get the disabled car space!
Don’t dwell on how your disability has restricted your lifestyle, focus on your abilities and create new ones!
The Physiotherapy & Exercise Info Evening held on Wednesday Sept 14th at the USQ Works Gym was very informative thanks to MS QLD and staff from local services who made the time to share with people living with MS what fantastic resources our local community can provide to improve our bodies ability to live better with MS.
If you want to know more contact the MS Support Group committee, Janice Wheeler or look up Toowoomba services on the MS QLD website.
Keep your cool in the kitchen…If you're sensitive to heat, keep a fan in the kitchen to keep cool. If baking or cooking something hot try to do it early in the day. Use the microwave—it makes meal prep faster and will not aggravate your heat sensitivity. Be careful washing dishes with hot water, use the dishwasher or delegate a washer. Avoid hot drinks and meals midday.
Thank you so much to my parents Kevin & Diane Moore
for their kind donation of stamps & stationery for the October newsletter! – Joanna
INDUSTRY AND PATIENTS REPRESENTATIVES DISCUSS TYSABRI & PML (excerpt from MSIF.) –from Judy
and patients representatives discuss PML. The European Medicines Agency, in
close cooperation with the United States Food and Drug Administration, held a
two-day workshop in
PML is a rare and usually
fatal disease that occurs almost exclusively in people receiving certain kinds
of drug treatment, including natalizumab (Tysabri) for MS.
Some 170 experts and
stakeholders discussed a common way forward for research in drug-related
PML. Christoph Thalheim, Secretary
General of the European MS Platform was a co-moderator and represented the
patients’ view in an opening speech and closing remarks. In a speech prepared
in consultation with people with MS and caregivers, Christoph described the
importance of patients’ input to ongoing health care discussions and decisions
and spoke of the difficulty in striking the right balance of benefits versus
risks when deciding for or against a therapy which is highly effective but
carries the risk of causing severe disability or even death.
Whatsup In Disability Magazine
Whatsup In Disability is a magazine produced by people
with disabilities for people with disabilities, carers and professional people
in Toowoomba and Southern Queensland,
Subscription is $27 per year, for which you will receive the latest Whatsup In Disability magazine, posted to you each two months. Phone (07) 46 326678 or Email email@example.com
Youngcare Apartments Gold Coast source.www.youngcare.com.au
The Youngcare Apartments Gold Coast
will be the second Youngcare Apartments in
The Novel Challenge
The Novel Challenge is the MS Readathon for adults! It takes place during the months of July, August, September, and October. More information is at www.thenovelchallenge.org.au
Our biggest challenge at the moment is finding ways to promote the program, and encourage people to sign up. If anyone has any ideas I would love to hear them! Perhaps you are in a book club, or know someone who owns a bookstore? Recently we welcomed a new sponsor Berkelouw Books (http://berkelouw.com.au/) on board as the ‘official bookseller for the MS Australia Novel Challenge’. Berkelouw is offering Novel Challenge participants 10% off all the books on our recommended reading lists (http://thenovelchallenge.org.au/Startchallenge/Selectabook/tabid/2954/Default.aspx) at their online bookstore. Hopefully this will serve as an additional incentive for potential participants to sign up.
Tamara Smith, Special Projects Manager, MS Australia - QLD
T 07 3840 0812 E firstname.lastname@example.org
Hello friends, I have been to the meeting
this morning about the use of the Baillie Henderson Therapy pool - while Qld.
Health fiddles round with the roof of the main pool. It is heated to 36C
which is far too hot for people with MS.
Aquatherapy Classes are available at the Grammar School Pool
Phone 4613 1488 Speak to Janice Wheeler or your GP about the EPC bulk billing scheme.
DRIVING WITH MS IN QUEENSLAND
Are you aware that since 1 March, 2006 drivers are required to report medical conditions, including Multiple Sclerosis, to the Department of Transport and Main Roads. (Drivers who fail to report such a condition as soon as it develops may receive a maximum A$6,000 penalty or be disqualified from driving for a certain period.)
All general enquires should be directed to
email@example.com or phone (02) 9264 7088 begin_of_the_skype_highlighting
ABIG THANK YOU to Officeworks,
for offering to cover the costs to print this newsletter for our postal members
during the next three months! This is a
huge saving to the MS Support Group. Please support Officeworks Toowoomba on
TOOWOOMBA MS SUPPORT GROUP CONTACTS
Also a contact for Parents with MS and Youngcare
JANICE WHEELER, MS Qld. Service Co-ordinator Phone 4638 9327 firstname.lastname@example.org